Chat with extra
Chat with extra is all about our community of families. This section of our website is exclusively for our members and helps you be part of our growing online community through sharing your stories and experiences of caring for a disabled child or young person.
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Posted:
08/01/2009 12:29:15 by
Administrator | with
1 comments
We have 4 children Ashley is 13 he has Autism and a general delay putting him mentally at about 6, Dan is 12 and just started at high school he is a gem, Jack is 5 he has cerebral palsy and epilepsy, the happiest sunniest child I have ever met, Maddy is 2, Jack has had to travel for 2 and a half hours today getting up at four o clock to have botox in his hamstrings to relieve his discomfort. They have stopped the procedure at our local hospital for under twelves not sure why, so we have to travel maybe 10 times a year with follow up appointments too. Is there anybody out there who has a child with total body cp who has had botox?
Posted:
08/01/2009 08:52:08 by
Administrator | with
4 comments
Just wanted to say that the Family Fund are amazing, they have helped my son so much over the last few years.
I really wouldnt know where I would be without them. Micheal my son has benefitted so much over the years with help from the Family Fund.
They truly are amazing and so thoughtful.
Keep up the amazing work guys. Lucy and Micheal xx
Posted:
06/01/2009 09:48:47 by
Administrator | with
1 comments
I have 3 children with CP I cannot go out myself, but I can chat if anyone is interested or needs a bit of support.