Privacy Policy

The following paragraphs set out our policy regarding the personal information we collect using this website (the home page of which can be found at www.familyfundextra.org.uk) about you and other family members (collectively referred to as ‘you’ and ‘your’ from now on) including any child in respect of whom you are using this website. By submitting personal information to us you consent to our collection and use of it as set out in this Privacy Policy.

To jump straight to a particular part of this Privacy Policy please click on the relevant heading below, or scroll down to read the Privacy Policy in full.

Who are we?
What information do we collect and why?
How will we use your information?
What third parties might we disclose your information to?
Do we hold information for statistical research purposes?
Will you receive information about goods and services of other organisations?
Will you receive information about our and our associated organisations’ services or marketing and fundraising information?
How do you stop information being sent to you about our and our associated organisations’ services or marketing and fundraising information, or the goods and services or other organisations?
How do you access the personal information we hold about you?
What if you apply to Family Fund for assistance?
What if you apply to become a member or supporter of the Family Fund Extra website?
What if you use Chat With Extra?
What if you make a purchase or donation online?
What if you use the Share Your Story and Upload a Photo Facilities?
What if you use the "Send an E-Card" or “Invite a Family a Friend” Facilities?
What if you apply for a job at Family Fund Extra?
Our use of cookies and other tracking information
What about third party websites that you can access via this website?
Security of your data
How will you know if we make any changes to this Privacy Policy?

Who are we?

We are Family Fund Extra, a trading name of Family Fund Trading Limited, a company registered in England (number 06293129) whose registered office and address for correspondence is 4 Alpha Court, Monks Cross Drive, Monks Cross, Huntington, York, North Yorkshire, YO32 9WN.  Our VAT number is 927 5068 07 Family Fund Trading Limited is a wholly-owned subsidiary of The Family Fund Trust for Families with Severely Disabled Children, a charity registered in England (number 1053866) and a company limited by guarantee registered in England (number 03166627) with the same registered office as Family Fund Trading Limited.

We operate this website, the home page of which can be found at http://www.familyfundextra.org.uk.  We are committed to ensuring that all personal information we hold is treated properly and in accordance with the Data Protection Act 1998 (“the Act”).  We are the Data Controller under the Act in respect of the personal information to which this Privacy Policy applies.We have notified the Office of the Information Commissioner of our data processing activities: our registration number is PZ1557710.

What information do we collect and why?

We collect information from you if you choose to contact us with an enquiry, request information from us, use any of our services (such as Chat with extra) or purchase products from us . The information we collect includes your contact details (such as name, postal address and email address) together with information that you may provide to us such as details of your child’s physical and mental health or condition and such other information as we require to respond to your enquiry. You warrant that any information you supply to us is accurate and up to date, that you will inform us if any such information requires updating and that if you submit a third party’s details to us you have that third party’s permission to do so.

How will we use your information?

As well as dealing with your enquiries and orders, we may (unless you have told us otherwise) use your personal information to provide you with details of how we are able to offer help, new services and changes to the website. If you do not wish to receive this information from us, or if you wish to receive this information only via a preferred medium, please email us at extracustomer@familyfund.org.uk  with details of your request.

What third parties might we disclose your information to?

We will only share personal information about you with third parties who are directly involved in dealing with your enquiry, fulfilling any order you have placed with us, where we are legally required to do so or where we have stated otherwise on this website. If you receive goods or services which involve the goods or services of a third party (such as Comet plc in relation to Comet gift cards) we will pass information about you to the supplier so that it can provide you with these goods or services and any associated services which we ask it to provide. 

We use our computer database (which includes anonymised personal information about you and your child) to undertake studies about the needs and circumstances of families with disabled children.  We will keep this information indefinitely and may provide it to the Family Fund Trust for families with Severely Disabled Children, a range of third parties including researchers and government departments and agencies.

Researchers sometimes contact us asking whether any families with whom we have worked would be interested in participating in external research projects.  In such circumstances, we may write to you to ask whether you would like to take part in the study or we may ask them to write to you on our behalf after we have placed them under an obligation to only use those of your details which we disclose to them for that purpose and to keep those details secure.  If the researcher proves that you have opted to take part in the study and consented to us disclosing personal information in addition to your contact details, we will release such personal information to that researcher. 

If you respond to any researcher who contacts you that researcher rather than us will become the data controller of any information you provide to that researcher and you should ask for details of how it will use that information.  If you do not wish to participate in such research projects at all please let us know.  Any published research results will contain general information on trends and/or issues faced by families with disabled children and will not identify individual families unless those families have given their express consent.

Do we hold information for statistical research purposes?

We use our computer database (which includes anonymised personal information about you and your child) to undertake studies about the needs and circumstances of families with disabled children.  We will keep this information indefinitely and may provide it to the Family Fund Trust for families with Severely Disabled Children, a range of third parties including researchers and government departments and agencies.

Will you receive information about goods and services of other organisations?

We may identify third parties from time to time who we think will be able to provide you with goods or services (including advice and support services) which you may be interested in.  Unless you let us know that you do not want us to, we will either contact you by post, email, text message or telephone with details of such third parties or we may ask them to contact you directly using any of the same methods after we have placed them under an obligation to only use those of your details which we disclose to them for that purpose and to keep those details secure. 

If you respond to any third party who contacts you that third party rather than us will become the data controller of any information you provide to that third party and you should ask for details of how it will use that information.

Will you receive information about our and our associated organisations’ services or marketing and fundraising information?

Unless you let us know that you do not want us to, we may contact you by post, email, text message or telephone to let you know more about our services and activities and the goods, services and activities of organisations with which we are associated.  A list of our associated organisations is available on request and includes Family Fund.

How do you stop information being sent to you about our and our associated organisations’ services or marketing and fundraising information, or the goods and services or other organisations?

We ask you when you submit information to us whether you wish to opt to receive this type of information from us, our associated organisations and from third parties.  You can ask that such information is no longer sent to you by logging in to the My Account page of this website and changing your communication preferences.  Alternatively you can email us at extracustomer@familyfund.org.uk with details of your request.  It may take up to fourteen working days to remove you from our marketing lists.

How do you access the personal information we hold about you?

To obtain a copy of the personal information we hold about you please write to our address for correspondence at the beginning of this Privacy Policy with details of your request. As soon as we are satisfied as to your identity we will send you, within 40 days of receipt of your written request, a copy of all the personal information we hold about you which we are legally required to disclose. Please contact us at the same address if you have any reason to believe that information we hold about you is inaccurate.

What if you apply to Family Fund for assistance?

Family Fund is associated with, but a separate entity to, Family Fund extra.  Family Fund is a trading name of The Family Fund Trust for Families with Severely Disabled Children.  Please see Who are we? above for further information about Family Fund.

This Privacy Policy covers the personal information you submit to us.  If you make an application to Family Fund for assistance, whether online or otherwise, Family Fund will ask you to agree to be bound by the terms of a separate data protection statement setting out, amongst other things, what your and Family Fund's obligations are with regard to the personal information which will be processed as a result of your application, the third parties to whom Family Fund may disclose your personal information and the uses Family Fund may make of your personal information. 

What if you apply to become a member or supporter of the Family Fund extra website?

If you apply to become a member or supporter of the Family Fund extra website you will be bound by the terms of this Privacy Policy as are all users of the website.  We will keep a record of your membership of the website and use your personal information in accordance with the terms of all notices posted on the website.

The personal information you are required to provide when you apply to register as a member or supporter must be accurate and complete. You agree not to impersonate any other person or to use a false name or personal details.  Not everybody is entitled to become a member, so we are required to carry out an assessment as to your eligibility to become a member.  The criteria which must be fulfilled to become a member can be found on the [insert] section of this website by clicking here.  The personal information we need to collect to enable us to complete a assessment includes:

•    Your name
•    Your contact address
•    Your contact telephone number
•    Your email address
•    Your National Insurance number
•    Your child or children’s names
•    Your child or children’s date of birth
•    Details of your child/children’s disability
•    The level of disability living allowance awarded for your child/children
•    Household income range

We may disclose information about you to any third party which is involved in the verification of your application including but not limited to [name third parties].  If you are not eligible to be a member of Family Fund Extra we will delete all personal information that you provided other than information required to become a supporter.

What if you use Chat with extra?

If you use Chat with extra you will be bound by the terms of the Chat with extra rules, which deal with how your information may be used and a copy of which can be found by clicking here.

What if you make a purchase or donation online?

If you make a purchase or donation online using the links provided on the Family Fund extra website you will be transferred to a secure server operated by a third party payment processor.  That payment processor will collect your credit card, debit card or (if paying by direct debit) bank account details along with other information in order to process your donation.  The information you provide when donating online or by any other method listed on this website will only be used in accordance with the terms of this Privacy Policy.

What if you use the Share Your Story and upload a photo facilities?

The Share Your Story and Upload a Photo facilities allow you to upload text and photos to an area of this website.  The text and photos will be treated in the same manner as comments posted on Chat with extra and the Chat with extra Rules apply as if the text and photos are comments to be posted on Chat With Extra.  If you do not wish us to post your story or photo on this website please do not upload the text or photos.

What if you use the "Send an E-Card" or “Invite a Family a Friend” facilities?

This website contains facilities which allow you to send an electronic postcard or message to a third party using contact details supplied by you. We will only use third party contact details for the purpose of delivering the electronic postcard or message unless that third party consents to us using its information for other purposes. If you choose to use the facilities you will be the data controller in respect of the third party's contact details and the information you have provided and we shall merely be providing the medium by which your electronic postcard or message is delivered. If you use the facilities you shall be bound by the provisions of the "Send an E-Card or Invite a Family or Friend" conditions set out in the Terms of Use of this website, a copy of which can be found by clicking here. 

What if you apply for a job at Family Fund extra?

We regularly post details of vacant positions at Family Fund Extra on this website. If you submit your details to us for the purpose of being considered to fill a vacancy we will initially only use your information for that purpose and may ask you to agree to be bound by the terms of a more detailed data protection consent setting out in detail the manner in which we may use your personal information.

Our use of cookies and other tracking information

Cookies are small pieces of information sent by a web server (such as that used to run this website) to an individual’s computer which are then stored on that computer’s hard drive. We use cookies to identify when a visit from a user of your computer is made to this website, to keep track of your browsing patterns and to enable this website's ordering systems to operate properly. Most browsers allow you to prevent cookies being stored on your computer: if you want to know how to do this please look at the Help menu on your browser. Please note that doing so may restrict your ability to use this website.

We may also collect information about where you are on the Internet (e.g. the URL you came from, IP address, and domain types like. org.uk and .com), your browser type, the country where your computer is located, the pages of our website that were viewed during your visit and any search terms that you entered on our website. We may collect this information even if you do not register with us as a member or supporter.

We monitor our site and capture information about your visit to improve the quality of the service we provide. This may include monitoring of traffic patterns and site usage to help us develop the site and administer the site. The information we hold about you may also be used to analyse your browsing preferences as part of our marketing programme. This may help us to select and tailor products, services or special discounts we think you will be interested to hear about on the website.

What about third party websites that you can access via this website?

This website contains links to other websites which are outside our control and are not covered by this Privacy Policy. If you access other websites using the links provided, the operators of those websites may collect personal information from you which will be used in accordance with their respective Privacy Policies which you should read. We are not liable for the practices of such third party website operators in respect of your personal information.

Security of your data

In accordance with the requirements of the Data Protection Act 1998 we keep secure records which contain personal information about you. The Internet is global and no data transmitted via the Internet can be guaranteed to be completely secure during transmission. Although the information you submit to us using our online application system is transmitted using 128-bit encryption technology, we cannot warrant the security of any information you transmit to us before we receive it. It is also possible that the information you provide to us will be temporarily transferred via a route outside the European Economic Area as it passes between you and us.

Please note that in accordance with our security procedures we may request proof of your identity before disclosing personal information to you.

How will you know if we make any changes to this Privacy Policy?

We may amend this Privacy Policy from time to time. You are bound by any changes we make to this Privacy Policy with effect from the date of the change.  If we make any substantial changes to the way in which we use your personal information we will notify you by posting a notice on this website's home page. You can view the current version of our Privacy Policy at any time by clicking on the Privacy Policy link on this website's home page.